AHLA issues guide to end-of-life legal issues
The American Health Lawyers Association has released a
guide outlining the key legal and practical issues that arise when caring for individuals who face a life-limiting condition. The resource provides key questions to guide families in making decisions along the continuum of care, and stresses that individuals should plan for the future and make informed choices now to ensure that their wishes are known at a future time when their physical and/or mental functioning may be impaired. The AHA in May launched a national education campaign,
"Put it in Writing", to encourage Americans to document their end-of-life preferences in advance directives while they are still healthy and able to make decisions.
Isn't It Time We Talk Consumer Education Materials
The Carolinas Center has the following printed consumer education materials available
to order. To order these materials, simply download and complete our order form
and then fax it to 919.677.4199, Attention: Publication Orders.
The following publications are now available for purchase:
Planning Your Care at the End of Life...
How to Talk About Your Choices
The Center's four-panel advance care planning brochure gives an overview of advance care planning
as well as specific questions to consider and discuss, and emphasizes the importance of conversation
about end of life wishes. It also includes definitions of advance directives. The brochure is a great
introductory resource for public places or for mailings. Minimum order of 50.
Download the Advance Care Planning Materials Order Form here.
Isn't It Time We Talk? How to plan for your care of the end of life...a guide to advance care planning
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This guide to advance care planning, developed in collaboration with other end of life experts
across the Carolinas, is now available from The Carolinas Center.
The planning guide is a step-by-step
workbook designed to help individuals and families plan for the care they want at the end of life.
The cover’s front and back pockets were designed to hold advance directive forms and other information.
The guide includes:
- Specific information about treatment options
- Thought-provoking questions about values and goals
- Tips for discussing the choices made,
- and a thorough explanation of advance directives.
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Download the Power Point Took Kit here.
CARING CONNECTIONS, a program of the National Hospice And Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from the Robert Wood Johnson Foundation.
Caring Connections
- Provides free resources, information and motivation for actively learning about end-of-life resources
- Promotes awareness of and engagement in efforts to increase access to quality end-of-life care
- Helps people connect with the resources they need, when they need them
- Brings together community, state and national partners working to improve end-of-life care
www.caringinfo.org provides a variety of free resources on topics including:
- Advance care planning
- Caregiving
- Pain
- Financial issues
- Hospice and palliative care
- Grief and loss
First-ever statewide consumer survey on the end of life
First-ever statewide consumer survey on the end of life - UPDATED with African American responses.
A North Carolina survey of consumers' attitudes toward end of life care shows that individuals' wishes
related to dying don't necessarily translate into actions while living. Only half of those surveyed
said they had taken definite steps to see that their wishes are followed, despite having thought about
end of life issues and having discussed them with immediate family. In November 2002, 8,000 AARP members
were surveyed by mail on end of life issues in a project co-sponsored by The Carolinas Center and AARP North Carolina.
To see the full report (PDF format) click
HERE.
To view a second survey report that shows the similarities and differences between African American
and non-African American responses; click
here.
Using the end of life survey: tools for hospices and end of life care coalitions
We have created a media kit and other tools to help you use the "North Carolina Consumer Survey on End of Life" results as a
way to reach out to your communities.
For hospices, there is a tip sheet, the media information (press release, key survey findings,
consumer tips & resources), sample letters to the editor and a sample op-ed piece. Start with the
tip sheet to make the best use of the rest of the material. The press release, letters and op-ed
can all be customized for your community.
For end of life care coalitions, there are separate tip sheets for North Carolina coalitions and
for Rallying Points coalitions nationwide. Start with the tip sheets to make the best use of the
rest of the material. In addition, you will find the media information (press release, key survey
findings, consumer tips & resources), sample letters to the editor and a sample op-ed piece.
The press release, letters and op-ed can all be customized for your community.
2004 South Carolina Public Attitudes Survey
The South Carolina State Survey is a cost-shared random probability survey of citizens age eighteen and older living in the State of South Carolina that is conducted biannually by the University of South Carolina's Institute for Public Service and Policy Research. The South Carolina State Survey allows policy makers, researchers, and other interested organizations an opportunity to gather reliable data in a timely and cost-effective manner.
To see the full report, click
HERE.
To view the Executive Summary, click
HERE.
For Resources on Grief: